Fatigue Misconceptions: Sleepiness, Laziness, cfs/me

Fatigue Misconceptions: Sleepiness, Laziness, cfs/me

November 10, 2019 61 By Jose Scott


And you can sleep for 12 hours and then it’s not helping your fatigue at all Hey guys, so today I wanted to do a video on fatigue misconceptions. This is the second video in my misconceptions series. first misconception Fatigue is also known as chronic fatigue syndrome So this is false because fatigue can either be a symptom or it could be a syndrome on its own. For me personally My fatigue is a sympton of my ehlers-danlos syndrome and my POTS And it can be a symptom of so many other conditions as well And then there’s chronic fatigue syndrome where Somebody’s condition is really defined by their fatigue and in most cases There’s no underlying cause that they know of that’s causing their fatigue, um, but that doesn’t mean that there isn’t one I mean there there is it’s just unknown And it’s just like a very debilitating fatigue and like that is what your condition is defined by it doesn’t mean that somebody who has chronic fatigue syndrome is Necessarily worse than somebody who has fatigue as one of their symptoms, or the other way around It just means that they that one has a cause the other one doesn’t and their condition is really defined by that fatigue Next, fatigue simply affects the mind. this is so not true for me when I’m fatigued yes, I feel kind of tired and out of it and I just feel like my brain is like insanely tired and can’t work well but there’s a whole nother aspect to it where your body is really involved and it’s not like oh I’m just tired because I’ve had a long day or something like that. It’s like Everything takes so much more effort. Like it’s it difficult, you know to like To do things like to walk to the bathroom like it’s a lot of effort it’s so tiring and I I mean, it’s really confusing to explain but It definitely affects way more than the mind and I don’t believe that people who don’t have fatigue like I think people who don’t have fatigue have never Experienced this you know, like you think you may have but I don’t believe that you have it’s a very weird weird thing exercise will help your fatigue and This is almost completely false I mean, some people can find benefit from exercise because there are so many benefits to exercise and it’s great for you, but Fatigue and exercise don’t really go hand-in-hand. If you exercise you will get more fatigued Like that’s just how it works And I know it might sound counterintuitive to some people because if you’re feeling low in your mind Or you’re too sleepy and you exercise it can help you but that’s not what it’s like with fatigue like it actually, it wears you out so much more and It’s like it really does make you worse That doesn’t mean you shouldn’t exercise because it is very healthy, but you need to plan it out. It can’t be like really strenuous or fatiguing and basically, my main thing is you can’t prescribe somebody with chronic fatigue syndrome exercise to cure their chronic fatigue syndrome or their fatigue is Symptom it’s that’s not how it works at all Fatigue it can always be helped by sleep. Not not so much. I mean every single day you Every single time you go to bed for like a whole night you wake up with more energy You know then you or you have more energy for that day Because like you did have some of the time when you slept to kind of like regain that energy but It’s not like that like that that’s like not like fatigue isn’t sleepiness at all and you can sleep for 12 hours and It’s not helping your fatigue at all because sleep doesn’t necessarily play a role in your fatigue. It’s it’s really it’s not tiredness that’s not what fatigue is um So, I mean no like sleep, sleep can help some people and sleep can not help others and honestly there’s a big misconception that people with fatigue sleep really well or people with fatigue are Always actually like sleepy and like no like personally when I’m fatigued. I usually don’t want to sleep. I can’t really do anything I want to lie down and not do anything.. or i dont know if I want to do that, I kind of have to do that, but I’m not sleepy I’m not gonna fall asleep. And if I try really hard, I’m still not going to fall asleep And it’s surely not going to help if I did fall asleep coffee and stimulants help with fatigue Personally, no and to my understanding with other people that I’ve spoken to no, they don’t have they can help with some of the brain fog and I think they can give you more clarity because like I said fatigue can really You know, mess with the mind they could cause like brain fog and other things but in terms in terms of like how difficult it is to go do things and like You know when I’m getting off to go walk somewhere and it takes so much effort My body doesn’t want to do it stimulants and coffee are not gonna help That’s just know how it works at all because like I said before it’s also not sleepiness It’s like you don’t have the energy to do something like it’s there’s no energy Available for you to take and I mean if you guys have heard of spoon theory I’m not like the biggest fan of spoon theory, but I mean, I do appreciate it and I think that it does It does explain things to some people and I think that I’ll tell you learn it is in a moment But fatigue is something that’s oftentimes You know can be portrayed really well with spoon theory versus other things like chronic pain. I feel like my chronic pain doesn’t necessarily fit into spoon theory as much whereas like fatigue does so Really fast if you don’t know what it is. It’s just this theory. I don’t know that much about it I’ve read it but like where basically You wake up and you have like a certain number of spoons let’s say so and- and if you don’t have fatigue or you don’t have a chronic illness like you- everything takes is a you know requires a spoon, but you have enough spoons to get you through your day and do everything that you want but then If you have a chronic illness a fatigue you get up and you shower. That showering Maybe you’ll take one spoon from you It will take like two or three spoons from me and then I need to go to work Well that traveling to work wouldn’t take any spoons from you but that’s a spoon down for me or two spoons down for me and it’s basically showing you that at a certain point you run out of spoons and it’s because as you do activities, which activities that are normal daily activities, you’re losing your spoons where somebody else might not lose spoons during those activities or as many It’s showing you basically how much you really need to figure out how you’re going to use your time when you deal with a chronic illness because you don’t you don’t have as much energy and also if you took too many spoons the before you might wake up and have less spoons than you normally do and like that’s kind of how it explains it I know I didn’t do a great job. I hope that that could still be helpful If you don’t know what it is, but I like spoon theory. I don’t love it But I think it fatigue is something that I can explain and very very well Fatigue can’t be a disability all that’s so false. It totally can be a hundred percent like like I said, some people have chronic fatigue syndrome where their syndrome is their fatigue like it’s debilitating and I mean it’s not and forget about like let’s just look at the body side of it like it’s exhausting to move and to do things and get up and now let’s look at the mental side of it like Work takes so much out of your school take so much out of you even just like normal day conversation you know thinking or standing there and standing there and thinking and talking with somebody like just takes so much out of you like It really is a disability and at a certain point in the day or if it’s just a bad day with your fatigue you Can’t perform the activities that you need to because of your fatigue So, I mean it really is a disability and obviously it depends on how bad your fatigue is for some people it’s not disabling Right now my fatigue is not disabling. Was it a couple years ago? Yeah also by that I meant like when I am fatigued sometimes it is disabling but like all my general day Like my fatigue levels are not disabling to me anymore. You can tell when somebody’s fatigued No, not really. I mean Personally when I’m fatigued, I don’t tend to look Bad, I mean you can’t really tell other than if you can tell them like using so much effort to do things but not really like I might look totally fine, but I’m not and sometimes somebody will have a conversation with me and I feel so fatigued I’m like struggling to keep up and like enjoy it and if you know me Like that’s not like me at all like I’m somebody who is always at the converse a I’m SuperDuper Loud and talkative but like when fatigue hits in I like to struggle and I’m all my effort I’m like trying to like just pretend like I’m listening or trying to listen and I have like this weird look on my face But like you wouldn’t know that that’s what I’m experienced and what it looks like. I’m just like involved and engaged. I’m okay and I’m not and the last one is something that people hear a lot and I don’t want to make it my first one because it’s just so basic and sounds dumb if you don’t experience People telling you this but you’re lazy That’s not what fatigue is and it bothers me so much First of all, it’s not I don’t like you have a lack of motivation with fatigue You don’t not want to get up like you don’t not want to do the things you want to do You want to do those things, but it’s really difficult to do them And you only have so much that you can do in a day. You can’t do like the normal amount You’re not lazy and yeah you know what I mean and especially you’re not lazy if you choose not to do something because Even in the moment if you have the energy to do so You know that it’s not worth it later on to have no more energy to complete the rest of your tasks or to just enjoy Like, you know what? I mean? Like it doesn’t sound like it takes energy if you don’t understand But just sitting down and coming home like that is energy like just like being awake like that takes up your spoons, you know So if I’m if I’m so fatigued I can’t I don’t feel well you know like at a certain point like you need enough spoons to feel well, so Like you’re also not lazy if you decide not to do certain things throughout the day that you want to do like and I hate when people try to say that you’re being lazy or if you just Exercise or if you just did it you’d enjoy it Like that, some people don’t get it’s not like I’m not enjoying it if I’m doing it like I want to be doing it but if I go do it It’s going to take so much out of me and people think that they know better like no You’re enjoy it once you get there You’ll have more energy like that’s literally the opposite of what happens like my energy drains like they just don’t get it It’s not like my mood impacts my fatigue. My fatigue can impact my mood, but if not, Not even so much in that sense. Like it’s more just like it You know what I mean it’s not it doesn’t have to do with my mood. It’s my energy It’s my fatigue. Like I don’t know. I thought that this could be helpful. I think that there’s a lot of misconceptions about fatigue and um Hopefully this this reaches beyond Just for people who have fatigue because I know you guys all get this like you guys all understand everything I’ve just said think I know you understand it and it feels good to have somebody else understand it I love when you guys comment and say you understand But also I’d love for people who don’t deal with fatigue Or they know somebody who deals with the teeth like to watch this video So if you ever want to share this video with somebody like who doesn’t understand like please do because I think that all these points Are just really important and I wish everybody Helped us, especially when I was really fatigued and didn’t know how to explain it, especially at the point I didn’t know about spoons theory I would have used that but I didn’t know how to explain that and yeah, alright. Bye guys